The unexpected story of medical marijuana and pediatric epilepsy | How To Use Cbd Oil For Fibromyalgia Pain
We are going to talk simply a bit about medical cannabis. How to use cbd oil for fibromyalgia pain. Back in 2010 I had the honor to help co-author a House bill right here in Colorado that I had actually hoped would help very seriously ill patients obtain access to medicinal cannabis, while enabling liable guidelines and also regulations around what I think most would take into consideration a really misconstrued industry. How to use cbd oil for fibromyalgia pain.
Nonetheless, what took place, in my viewpoint, were some of one of the most pesky instances of the misuse of cannabis law and cannabis usage that I could have visualized.
I had the opportunity to satisfy a extremely special buddy of mine, Charlotte Figi. Charlotte, besides being dear to my heart, is a six-year-old, and also like most little six-year-olds Charlotte, she just enjoys the color pink, enjoys to go play in the timbers with her twin sibling, Chase, and also her older brother, Max.
Charlotte’s one of the most regular cannabis customers that I recognize. There it is; there’s words: cannabis. Prompts all sort of different people, various things to different individuals. How to use cbd oil for fibromyalgia pain. To some individuals, it’s the adversary’s weed, right? Others, it’s simply a pseudo medical reason to get high, as well as yet, others find true medicinal advantage with it.
Yet, at the end of the day, what are we discussing right here? We’re simply discussing a plant. OK? This is a plant that expands anywhere from 3 to eight feet tall, normally. Regarding every seven to ten weeks, it’ll create a flower or a bud, as you know it, however that’s it, simply a plant.
It even grows on 6 continents. But it’s a plant that Charlotte Figi uses a great deal of to control her grand mal seizures. And also in no uncertain terms, Charlotte’s life depends on this plant. You see, Charlotte was identified when she was 3 months old with a really, extremely rare and also terrible kind of epilepsy, known as Dravet syndrome.
And Charlotte will certainly experience a very high variety of what we call tonic-clonic, or grand mal seizures – concerning one every 20 to 25 mins, men. As well as these seizures, these seizures will last anywhere from 15 to 25 mins.
So essentially, Charlotte’s life is spent in a seizure and also catatonic state. Twice, Charlotte’s mom, Paige, has actually needed to bring her back to life making use of CPR. How to use cbd oil for fibromyalgia pain. At any offered time, Charlotte will certainly be on seven daily different pharmaceutical seizure medications, none of which control her seizures.
When Charlotte was 5 years old, her seizures had actually reached their worst. As well as her medical team informed the Figi household points like “Start making preparations for her death.” She was most likely not going to wake up from this.
The Figis reluctantly authorized a do-not-resuscitate order for Charlotte around this time. She was sent house with a fitted chair, a feeding tube in her belly as she ‘d lost all of her life skills, and also the household had to say their goodbyes.
It didn’t appear like she would certainly pull through. How to use cbd oil for fibromyalgia pain. But bear in mind, thanks to my old friend Ben and that neck and back pain epidemic, it wasn’t the end for Charlotte, and the Figis weren’t about to give up hope.
And they set out on a journey to discover, of all people, my family members and also our honorary bro, Dr. Sanjay Gupta, we set out on a mission, a really one-of-a-kind mission, to breed a special strain of cannabis plant, one of these was basically free of the psychoactive compound that you all understand is tetrahydrocannabinol, or THC. As well as one that was really, really high in the obscure non-psychoactive compound called CBD, or cannabidiol.
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Well, we succeeded in this initiative in January of 2012, as well as this is right around the moment that the Figis were authorizing their do-not-resuscitate order. And also luckily, Paige Figi found us in February of 2012.

How to use cbd oil for fibromyalgia pain. Now, my bros and I had read a great deal of research studies, a great deal of study, that had actually been coming out of Israel from the 80s, 90s, and also approximately today on this study. My bros and also I thought that this little-known compound may simply be the missing web link to offer some validity in the world of cannabis research study. And as it turns out we were right. Currently, the plant that we had produced, while it may have enormous medical benefits, totally non-psychoactive was totally pointless to Ben. So we named the plant The Hippie’s Disappointment and also while it didn’t verify beneficial to Ben, it confirmed incredibly helpful to little Charlotte. Therefore when Paige called us that February, informed us of Charlotte’s condition, we prepared to enter; we were ready to help.
Actually, we couldn’t wait … up until Paige went down the bomb on us: Charlotte was five years of ages. How to use cbd oil for fibromyalgia pain. And consider it momentarily. We’re most likely to offer a five-year-old cannabis? Essentially, visions of this were popping in my head.
Yet we overcame this, pretty rapidly, and also we began to remove and also develop, and ratio, a non-psychoactive, laboratory examined pediatric tincture for Charlotte. As well as I’m pleased to tell you that within the first administration, Charlotte went from having a seizure every 20 to 25 minutes – that’s 400 a week, men – to 0-1 each week.
Charlotte was off 100% of her drugs. How to use cbd oil for fibromyalgia pain. No more drugs. Charlotte is currently awake; she’s active. We changed the name of the plant from The Hippie’s Disappointment and also currently the name is passionately called Charlotte’s Web, in honor of Charlotte, and it always will certainly be Charlotte’s Web.
Now, Charlotte’s not an isolated case below. We presently deal with over 40 pediatric patients right here in Colorado with the very same, similar, and also believe it or otherwise, even better outcomes than what Charlotte experiences.
Presently, there are over 200 family members originating from around the globe to Colorado to participate in our treatment program. We’re quickly to relocate into California also where we literally have over a thousand youngsters with pediatric epilepsy and also their families awaiting us, as well as we’ll be moving to other states as quickly as laws will certainly enable us.
Zaki Jackson is number two person right after Charlotte, a great friend of ours. Zaki, sadly, he experiences a syndrome referred to as Doose syndrome. How to use cbd oil for fibromyalgia pain. And before this treatment, Zaki was experiencing over 200 seizures a day.
On October 4th, we’re all going to get together to commemorate Zaki’s one year seizure-free anniversary. And you recognize, it’s really, really tough for me as an outsider to communicate what this means to households, and I desired Zaki’s mother, Heather Jackson, to tell you individuals what this has suggested to her.
Heather Jackson: And I reach claim, after almost a decade, I get to satisfy him for the very first time, without all this seizure activity. How to use cbd oil for fibromyalgia pain. He had drugs. If you can imagine waiting ten years to meet your youngster! So, you can see, this has a favorable effect on a lot of family members.
So, because of that, my brothers and I began a nonprofit organization called the Realm of Caring, and also the Realm helps to provide support, resources, education, physician-backed medical researches, in addition to secure as well as inexpensive access to our treatment program.
Presently, the Realm is in the center of establishing study protocols with several of the nation’s top epileptologists in order to start getting down to the bottom of the scientific research even additionally, as to why this plant is working so well for these youngsters.
So, why is this plant working so well? How to use cbd oil for fibromyalgia pain. Well, cannabidiol has the highest possible anti-inflammatory and neuroprotectant properties discovered in nature, as well as CBD actually interacts with frameworks on the surface of brain cells referred to as receptors, as well as working as that neuroprotectant as well as anti-inflammatory assists to decrease, and as you’ve seen, even eliminate seizure activity.
Currently, while we do not know, it seems as though CBD is in fact playing a role in the fixing of brain function. And research study researchers and our doctors think that this is why Charlotte, Zaki, and also various other youngsters in this program are in fact experiencing an recurring progression of motor, social and also developmental skills, indicating that they’re really coming back to cognition an increasing number of and extra on a daily basis.
They’re improving, men, I mean, it’s sensational. How to use cbd oil for fibromyalgia pain. I think it’s additionally essential to keep in mind here that epilepsy is not the only thing that CBD seems to be useful for. According to a few of our early researches and researches out of Israel right now, they’re showing incredible lead to PTSD, in migraine headaches, clinical depression, joint inflammation, cancer cells, as well as cardiovascular disease, and even further studies, believe it or not, are showing this obscure compound might have the capacities of helping to stop the progression of Parkinson’s, Alzheimer’s, ALS, MS, and diabetes mellitus.
Now, I believe it’s rather clear, most of us understand extremely, extremely, really little regarding this plant. How to use cbd oil for fibromyalgia pain. We’ve lived in the last 80 years in this nation under a cloud of propaganda as well as concern. We’re recently, though, beginning to awaken from that fear.
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We’re beginning to change that worry with approval, understanding, as well as education. What’s taking place? Amazing things, right? Incredible discoveries. Which’s what takes place whenever you’re able to lay worry to remainder.
Yet, we have a long way to go below. I desire you all to think of something with me real quick. How to use cbd oil for fibromyalgia pain. Charlotte is awake currently, OK? After experiencing a five-year darkness as well as concern type nightmare. I don’t recognize just how you ‘d feel, however me, I would certainly seem like doing some discovering, I ‘d feel like seeing the globe, going out there.
Well, think of Charlotte really feels quite the very same. Yet photo this: She can’t even leave the state of Colorado. If she does, she deals with a life-and-death situation without her medicine. And also the truth that the minute the Figis family, when they leave the state of Colorado on a family trip with her medicine, they end up being drug traffickers.
The number of other kids can’t enter the state to get this treatment? How to use cbd oil for fibromyalgia pain. It’s not that easy to pack your entire life up and move from anywhere you remain in the nation, or the world for that matter, as well as simply transfer to Colorado. And also furthermore, they should not need to! Colorado children are not different, physiologically from a youngster that stays in a Midwestern state. It injures me to tell you this next part, however this is a reality we encounter all the time here.
Simply last week, a extremely unique young boy in Indiana with Dravet syndrome passed away since his household could not go out below to get the treatment in time. As well as we could not send it to him due to the fact that the law doesn’t enable it. If the law allowed it, it’s a next-day air bundle. It’s that simple. People, youngsters are dying. How to use cbd oil for fibromyalgia pain. Begin! We can do better than this. As humans, we need to do better than this. And also I’m confident that we will do better than this.
Now, just how many even more Charlottes? The number of even more Zakis? How many even more kids are available that this plant could possibly offer relief for? This asks us to ask the concern: Are we ready to transform our nationwide view on medicinal cannabis as well as trade to save a thousand more lives? Just how about simply another life? Well, guys, I have a really unique pal right here tonite that strongly thinks this to be the case.
As well as if you all do not mind, I would enjoy to present you to among the most brave little girls I’ve ever satisfied in my life. How to use cbd oil for fibromyalgia pain. Please welcome as well as fulfill Charlotte Figi and her moms and dads, Matt and Paige.
And there’s a substantial amount of people coming here, needing to relocate and root out and coming right here. I can’t also provide you a number; we take 4,000 calls a month. I believe there are some parents in the group tonight.
Exists anything that amazed you regarding the treatment, I indicate, a) most likely that it functioned, but is there anything else that wasn’t covered in the talk? PF: it was the initial treatment that we tried, and we attempted whatever – even diet regimen that seemed relatively safe – it was the very first treatment we attempted that worked this well, which had beneficial side effects.
How to use cbd oil for fibromyalgia pain. There’s not a one negative side effect, as well as it’s just been beneficial. That is unusual with epilepsy. I wish this gives you some insights right into the medical benefits of marijuana. How to use cbd oil for fibromyalgia pain.
How To Use Cbd Oil For Fibromyalgia Pain